Fatal Familial Insomnia
Law school suddenly got a lot easier.
I hadn’t even worried about it, going in— the amount of work, I mean. “Law school huh? Lots of reading!” is what people always said when I told them it was my goal. Every major, every post-grad education, every career path has some stock phrase that people dispense when you announce your commitment. Before that had been Political Science, in undergrad— “Are you gonna be a politician?”. My college roommate was an Early Childhood Education and Psych double-major, so for her they said “You must want to be a mom!” and “Are you analyzing me RIGHT NOW?” respectively.
The other stock phrase that comes out when you announce your marriage to Law School is about money. “You wanna be rich huh?” Natürlich. Except not really. I wanted to work for the ACLU, or teach pretty, sweatered Stanford kids about the Supreme Court. I wanted walk across the quad in the damp fall twilight, a newspaper folded and crinkling under my arms, a pair of sincere half-rims imprinting themselves on my nose, half my paycheck ferried off to NPR each month. Extravagant lifestyle, right?
But what no one acknowledges, ever, is that back-breaking, ‘noble’ professions are harder to come by than lucrative, amoral ones. Take the college roommate, for example: Beth teaches at a cush-ass charter school in some cloyingly big suburb out of Pittsburgh. She tutors in the dens of chilly McMansions in the country’s second-wealthiest neighborhood, helping Adderall-soaked preteens cheat on placement exams for $75/hr. This after three years of applying to public schools in the sweltering pits of educational poverty: inner-city Chicago, then Cleveland and Detroit, then the Delta, then Arizona, then Alaska.
She got a gig in a one-room school outside of Nome or wherever the fuck Balto happened— 22k a year. Then salaries got suspended to balance the budget. She said that was fine. Halfway on her drive up to Nome (she couldn’t afford a plane ticket), Beth’s tires exploded on a pile of tacks. After two days in a motel in North Platte, Nebraska, she got a call from the school in Pittsburgh and they quoted her a sinful, decadent 40k salary. She replaced all her tires and turned the car around.
Most of the people who survive my law program’ll probably end up as shit-licking consultants. I’m not blaming them for their fall. The bell curve slices you up like that; there are only so many government positions, only so many professorships outside of MBA programs. You can die by straining to get a moral spot, or you can make double the amount writing up briefs for Silicon Valley behemoths that sue small businesses and work-at-home programmers for having an itty-bitty line of code that resembles something the behemoths’ employees wrote in-house. You can sue little girls for downloading Nicki Minaj videos off BitTorrent. You can help Fortune 500 companies take out hopeful life insurance policies on their older employees, help them target the ones who’ve been suspiciously making liberal use of their health insurance lately.
It’s easy to justify. Say you have loans (you do, after all). Say you gotta eat. All else equal, hitch your wagon to the gunner who sat next to you in Constitutional Law during your second semester, pop out a few above-average bright kids with social anxiety problems. Now you can take whatever nasty, pavement-fellating consultant job you want with inner impunity. Consequentialism. Gotta feed your kids. Gotta send ‘em to school.
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I’ll probably end up the same way, job-wise at least— I’ve no cute L-1 peer to court and no functional womb to justify my selling out— but for now I’m still dying to set the curve. Just once I want to be the outlier on the right end of the grade distribution; In my dreams, everybody wants to slaughter me to set the spectrum right.
But shit’s hard. When I applied to SUNY Stony Brook’s law program, I didn’t even worry about that cliché that I’d have to read “a lot”. Whatever. I can read speedily and voluminously, and I’d never had a problem before. I spent summer after summer perched on a log at my family’s old cabin in Buttfuck Egypt Tennessee, reading. I’d whip through four, five adult books a day. Big books. The Stand. It. Thomas Hariss’ Hannibal Series (spoiler alert: he ate his sister). John Jake’s The Bastard Series, full of incest, pre-modern menstruation accoutrements, and generations of bloodied American wars. Every single VC Andrews story, tales of pale, ethereal kids locked in basements and attics, brothers and sisters and mothers and daughters compelled by lonely desperation to breech the world’s earliest taboos…
But Law School was a bitch. Lot of reading, no kidding. In L-1, I barely scrapped by, dead center of the bell curve. The majority is the most anonymous place to be.
First year of law school you’re banned from having a job, so (natürlich) I took one, working nights at a sleep research firm out on Long Island, videotaping kids with bed-wetting and night terrors. I set up the equipment and left them alone, watching the video feed via monitor while perched on a stool in the next room. Every night, I brought my law books and Court decisions, reams of yellow paper, thick highlighters, and leaky pens.
But I couldn’t peel myself from watching the children fidget in their beds, at first clutching their bears and dolls and sighing to themselves, then softly simpering in loneliness, then singing themselves (oh premature self-soothing!) to sleep, or reciting to themselves their well-worn favorite bedtime stories. Then they’d drift off and the real show would start. I’d duck into my book, but I couldn’t help but watch ‘em scream in their infant sleep, watch them roll and throw pillows and furniture and shake, thrash like corpses lifted up by cyclones. They were feral, and scared the way only something brainless can be scared; they’d knock themselves against the walls until shallow bruises settled on their little sides. I couldn’t get any reading done.
The only book that could tear me away from the pitching, reeling horrors of the sleeping kids was the Cambridge University Press Manual of Sleep Disorders, which some researcher at the firm had left in the waiting room for anxious parents to peruse. The disorders’ names and symptoms enchanted me. Dyssomnia. Somnabulism. Somniloquy. Exploding Head Syndrome. Each one read like a curse from a spell book.
After L-1, I had a compendium-like knowledge of sleep disorders and a C-average. That summer, I quit the firm and took an internship at a city prosecutor’s office in Jersey that pursued maximum sentencing for underage former gang members. Unpaid internship.
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Fatal Familial Insomnia is characterized by complete, 100% sleeplessness, excessive energy, lack of appetite, brief hallucinations, profuse sweating, pinpoint pupils, premature menopause, rapid weight loss, premature dementia, and swift morbidity. The course of the disorder is remarkably rapid and predictable to a frighteningly airtight degree: there is a four month onset where insomnia slowly seeps in, followed by a plunging descent into madness.
It is the rarest of known sleep disorders, caused by a mutation to the protein PrPSc and is passed hereditarily. It’s most closely related to Mad Cow Disease, as well as Kuru, the putative ‘laughing disease’ found in cannibalistic tribes, both of which are also caused by deformed, curled proteins in the brain, called prions. Only 40 families in the world have been documented to exhibit the mutated Fatal Familial Insomnia prion, with only 100 known carriers currently alive.
The course of FFI is incredibly short. After ten months, the sufferer is usually dead.
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I remember exploring the family cemetery, in a valley by the cabin in Tennessee where I used to read. It was basically a yellowed field with sunken earth and rain-washed chunks of limestone sitting at angles as jagged as my Tennessee forebears’ few teeth. The ground was sodden and the muddy outlines of grave holes and coffins were fully visible. When I was done with my second or third book each day, I’d set out for the cemetery with a notepad and crayon for etchings, and a pair of aqua shoes on.
The grave that fascinated me most was one of a Great-grandpa, Malus “Dumpy” Whitehead. He’d met me, before he died, but I’d been a one-year-old so it scarcely counts. His voice, they say, was gruff and deep as sin, and made me cry and pull away from him. A recovered-ish alcoholic, he was a gentle man.
My family wasn’t really in contact with our living Tennessee ancestors; we never went down till “Dumpy” died and we inherited the cabin. My grandma Jean, his daughter, was always curt about him. She’d learned to drive at six years old, steering him home from the bar, and that was all about him she’d offer.
All I knew (and know) is that he died abruptly, like all the Whiteheads. They found him thin and famished and crazed, nigh-comatose on his porch, raving and mad yet drug-free and clean as a whistle.
So now it’s L-2 and I’m pulling ahead. B’s and A’s, and I haven’t set the curve yet, but I know where I’m headed. The trajectory is indisputably up. My marriage to the law, once soured and sexless, got re-ignited somehow, and I’m crackling over the classrooms like a small fire swallowing twigs.
Maybe it’s because I quit the job in the sleep center, my little cheating dalliance with another field. Maybe it’s the summer internship, where I sweltered in a tiny Newark office copying briefs and criminal records for forty free hours a week, sweating my way to wisdom.
Or maybe, probably, it’s this reservoir of energy and time I have now; Bountiful time. I read every page and footnote and all the recommended and optional readings, sometimes weeks ahead. I gulp down two, three, four law books a day. Legal history. Political philosophy. Biographies of Oliver Wendell Holmes and Rehnquist. All the Supreme Court and New York Appellate Court Google Alerts. I read it all. Everyday. I seldom break for anything.
They say law school is “a lot of reading”. They say it’s not just about smarts. They say you have to die by your reading eyes. They say you have to want it. This means making sacrifices. If something falls through the cracks, my grandma used to say, then it mustn’t have been very big.
I can’t sleep. I can’t sleep.